Privacy Policy
Privacy Policy
Last updated: December 2025
Proton Research Referral Services (“we”, “us”, “our”) is committed to protecting your privacy. This Privacy Policy explains how we collect, use, store, and share your personal information in accordance with the UK GDPR and applicable data protection laws.
1. Data Controller
The data controller responsible for your information is: Proton Research Referral Services Email: protonreferral@proton.me
2. Information We Collect
When you complete our referral form, we collect the information necessary to forward your details to clinical research clinics. This may include:
- personal details (name, age, contact information)
- health and medical history
- lifestyle information
- trial preferences (location, type of study, compensation interest)
- any additional information you choose to provide
We only collect information that you directly provide to us.
Because health information is considered special category data, we process it only with your explicit consent.
3. Legal Basis for Processing
We process your personal data under the following legal bases:
- Explicit consent – for processing health information and forwarding your details to clinics
- Legitimate interest – to operate our referral service and communicate with you
- Compliance with legal obligations – where required by law
You may withdraw your consent at any time.
4. How We Use Your Information
We use your information to:
- review your profile for referral suitability
- forward your details to human trial clinics
- allow clinics to assess whether you may meet their eligibility criteria
- contact you if clarification or updates are needed
We do not run clinical trials, make placement decisions, or influence clinic selections.
5. Who We Share Your Information With
We share your information only with:
- clinical research clinics that may have relevant trial opportunities
- trusted service providers who assist in securely transmitting or storing your data
- We do not sell your information to marketers or unrelated third parties.
- Clinics will contact you directly if they believe you may be a suitable match.
6. International Data Transfers
Some of our service providers (such as email or cloud storage providers) may process data outside the UK/EU. Where this occurs, we ensure appropriate safeguards are in place, such as:
- adequacy decisions
- Standard Contractual Clauses (SCCs)
- equivalent legal protections
7. Data Security
We take reasonable steps to protect your information from loss, misuse, or unauthorised access. While no system is completely secure, we use appropriate technical and organisational measures to safeguard your data.
8. Your Rights
Under the UK GDPR, you have the right to:
- access the information we hold about you
- request corrections to inaccurate information
- request deletion of your data
- withdraw consent at any time
- restrict or object to processing
- request data portability
- lodge a complaint with the Information Commissioner’s Office (ICO)
To exercise these rights, contact us at protonreferral@proton.me.
9. How Long We Keep Your Information
We retain your information only for as long as necessary to provide our referral service or as required by law. You may request deletion of your data at any time.
10. Automated Decision‑Making
We do not use automated decision‑making or profiling. All referrals are processed manually.
11. Whether Providing Data Is Mandatory
Providing your information is voluntary, but we cannot forward your details to clinics without it.
12. Our Role and Limitations
It is important to understand:
- we are not a clinical trial provider
- we do not offer medical advice, treatments, or diagnoses
- we do not guarantee placement in any clinical trial
- we act solely as a referral agent
Our purpose is to help your information reach clinics that may have suitable opportunities.
13. Updates to This Policy
We may update this Privacy Policy from time to time. Any changes will be posted on this page with an updated revision date.
14. Contact Us
If you have questions about this Privacy Policy or how your information is handled, please contact: protonreferral@proton.me